The Foundation for Diabetes Research (FDR) was founded in July 1999 by families in Morris, Sussex, Essex, and Union counties. The mission of the organization is to fund research to find a cure for Type I diabetes. A committee comprised of members of our medical and scientific community and lay members review grants and give their opinions to fund certain grants to the Board of Directors. Our goal is to be “Angel Funders” that have the ability to grant smaller projects with merit so that these grants may have a chance of attracting recognition from organizations such as the National Institute of Health (NIH).
In the past two decades, because of the extraordinary people who raise funds on our behalf, we have been able to fund over $5 million in diabetes research.
Today, advances in research and individualized treatment strategies are helping people with diabetes to lead healthier lives. However, it is important to remember that diabetes remains a serious, chronic condition with significant short-term and long-term complications. Low-blood sugars are a constant concern. People with diabetes are at risk of developing chronic complications, including nerve and blood vessel damage, which can affect the eyes, kidneys, limbs, heart and stomach.
The Foundation for Diabetes Research is a 501(c) (3) non-profit organization. Our Federal Tax ID number is 22-3664100. To contribute to the efforts of the Foundation for Diabetes Research and the quest for a cure: a world without diabetes, please contact the Foundation by calling (973) 994-1972 or emailing us at [email protected].
If you have any of the following symptoms, ask your doctor to test you for diabetes:
- The need to urinate more than usual
- Constant thirst
- Unusual weight loss
- Feeling weak or tired
- Blurred vision
- Tingling or numbness in hands or feet
- Cuts and bruises that are slow to heal
- Frequent and recurring infections such as urinary tract, boils, fungus
- Erection impairment in men, and unusual vaginal dryness in women
- Extreme hunger
- Feeling nauseous and vomiting
Message to Champions
By Dr. Anne L. Peters, Physician to Gary Hall, Jr.,
Olympic Champion with Type I Diabetes
Gary Hall, Jr.
Photo credit: Allsport
It is late in the evening. I am standing on the observation platform for the warm up pool at the Olympic Natatorium in Sydney, Australia. The air is damp, warm and chlorine-scented. I am with nine other people, the family of Gary Hall, Jr. We are waiting with expectant impatience. Then we see him coming towards us. Tall, tousled still wet hair, moving as though physically exhausted but with a grin that explodes across his face in joy and relief. We encircle him, one by one embracing him. From his pants pocket he unobtrusively pulls out a gold medal. We take turns holding it. We are crying.
How did I get to this point? Me, who has rarely opened the sports section or watched a sporting event on television. I got to the Olympics by being a doctor, which has been my lifelong obsession. I decided early, at age 5, that I wanted to be a physician because I loved science, math and people. Diabetes is the field I chose because in no other area of medicine are the three so closely linked. And I became increasingly passionate about treating the disease as I learned how great the need for improvement was.
As I have practice medicine, one of the things I have learned is that one heals people by learning how to apply technology and love in equal measure. The traditional “godlike” physicians no longer holds much sway in this world of managed care contracting and Internet-based information access. Moreover, the more patients question, the more they learn and become involved in their own health. And as every mother knows, the hardest, most important part of love is figuring out the fine balance between giving appropriate independence while at the same time maintaining clear limits and boundaries. This also applies to a doctor. Many physicians don’t succeed at diabetes because the regiments they create are too rigid. My goal is to adjust the diabetes treatment to the patient’s lifestyle, not the other way around.
Gary Hall, Jr. exemplifies this approach. Halfway between the Atlanta and Sydney Olympics he developed Type I diabetes. He had won two gold and two silver medals in Atlanta and his chances looked good for Sydney. But after he was diagnosed with diabetes, three doctors in Phoenix told him he could never swim competitively again. I can understand why. Diabetes is, in part, a disease of muscle fuel metabolism. At the Olympic level, races are won and lost by a hundredth of a second. No one with diabetes had ever competed in such an aerobic sport at such a high level. To say yes meant risking losing. It was easier to counsel Gary to change his dreams.
But I tend to be a bit of a rebel and fight hard when I am told something isn’t possible, especially if it is something I want to do. When Gary and his fiancée, Elizabeth, came to see me in Los Angeles they arrived for their appointment 2 hours late. I had to go to the San Fernando Valley to give a talk, so I crammed them (both over 6 feet tall) into my little red VW Beetle and drove them across town with me. I think I disarmed them by being, unintentionally, so different. After spending several hours with Gary I knew he could do anything he wanted. I still wasn’t quite sure about winning the Olympics because I knew nothing about competitive swimming, but I told him I would help him. I told him he could try.
To learn about swimming, I flew to Berkeley, where Gary was training, to sit by the pool and check his blood sugars, to learn about his nutritional needs, to meet his coach, to be sure I didn’t think he would drown from hypoglycemia during a workout. After spending the day with him, I knew he could make it to the Olympics, if that was what he chose to do. And choose to do it he did.
I was with Gary at his swimming meets where we cheered him on to make the cutoffs to qualify of the Olympic trials. I was in Indianapolis, screaming encouragement as he beat the competition and won a spot on the US Olympic team. And I was with him in Sydney where he won two gold medals, a silver and a bronze. It is hard to imagine being more proud of anyone than I am of Gary. But the path was not easy. Swimming competitively with Type I diabetes is not simple. Yet, it IS possible. And I also had to learn to let go with Gary. He did his best with my support but not necessarily with too much specific advice. He is very smart. He knows his body very well. I could teach him theory but the application was up to him.
Part of the reason I fought so hard for Gary is because of his willingness to take on the task of role model for others with diabetes. He will increasingly be serving as a spokesperson for people with diabetes. He will do what I cannot – show people by example how to cope with this disease. And as amazing as Gary is, his story is one that many of us live, that of overcoming challenges, of following one’s dreams, of caring for other people. Treating diabetes is a partnership, between health care provider and patient, between mother and child, husband and wife. Although it takes a great effort to treat, there are many benefits that come from the process.
Every child, every adult who has diabetes or takes care of someone who does, deserves a gold medal for trying. And until we find a cure, I will be on the sidelines, cheering as hard as I can.
Anne L. Peters, MD is a Professor of Medicine at the Keck School of Medicine, University of Southern California. She is the Director of the Clinical Diabetes Program at USC and at LA County, where she is designing and running a large outpatient diabetes program for the poor in Los Angeles. She also heads a center for diabetes treatment and clinical research, funded by a newly established diabetes foundation.
Voices of Diabetes
Life is NEVER the Same
When your child or loved one is diagnosed with Type I diabetes, life is forever changed. People ask, “Can you outgrow diabetes? Do you need to take shots for the rest of your life?” Unless you have lived closely to diabetes, you may not be aware how the focus of one’s life changes. After diagnosis, everyday life includes:
Insulin injections; rotating injection sites; blood sugar testing at least 4 times a day; Regular insulin, Humalog, NPH insulin, Lantus (Glargine); prescriptions; meal planning – counting carbohydrates (carbs); snacks; recording blood sugars and carbs in a logbook; waking up in the middle of the night to test blood sugars; treatment of low blood sugar (hypoglycemia); treatment of high blood sugar (hyperglycemia); exercise and delayed hypoglycemia; fear of going low in the middle of the night; preventing Ketoacidosis; test strips, lancets and blood sugar meters; doctor appointments every 3 months; knowing how emotions and hormones affect blood sugars; continuing diabetes education; Hemoglobin A1c tests every 3 months; educating friends, families, teachers, coaches, school nurses and substitute teachers; concern about food at birthday parties; sick day management; and concern about long term complications.
Every day is a new day. A cure is coming. We must keep everyone healthy until that time.
From our Hearts to Yours…”Voices of Diabetes”
- Nurit Gans
- Ariel Glick
- Susan Fishman-Kowitt
- Alyson Thelin
- Asaf Gans
- Irene N. Sills, MD
- Margaret Szura
- Aimee Cohen
- Itai Gans
- Zelda Goodhart
- Marcia Simon
- Fern Walter Goodhart
- Tanya and Charles Tabak
- Jane Beilenson
- Eve-Lynn’s Family
- Sue Rapp
- Randie Harmelin
- Pearl Berkowitz
- Lisa Hendel
- Eric Kaplan
- Samantha, Robyn and Melanie Hendel
- Gary Power
- Nancy and David Rosenfield
- Tracy Dunleavy
Best all around resource. Click on “chats” and then “parents” to connect anytime with other families dealing with diabetes.
The best resource for everything related to insulin pumps. This is the homepage, but you can “join” by completing a brief member profile. Forewarning: you will receive LOTS of daily E-mails unless you opt to join the “digest,” which will enable you to receive 2 daily E-mails listing everything that’s been posted. Topics cover everything imaginable related to diabetes. Over 2,300 members, most of whom are adults, but a growing number of participants have children as young as 2 years old on insulin pumps. A great and handy resource for posting questions that are answered quickly.
Created by Al Gordon, a Canadian who’s very vocal and visible in the research community. This Web site highlights the “state-of-the-art” achievements in diabetes research. Frequent contributors post articles, abstracts, etc. culled from diverse sources. Click on the “message board” page of the Web site to access these posts.
The Diabetes Research Institute (DRI) is an international center dedicated exclusively to the cure and treatment of diabetes. The result of parents of children with diabetes who banded together more than twenty-five years ago to focus scientific attention on this disease, the DRI today stands as a world leader in innovative cure-related research.